Showing posts with label Charcot-Marie-Tooth Awareness Month. Show all posts
Showing posts with label Charcot-Marie-Tooth Awareness Month. Show all posts

Saturday, August 17, 2013

CMT and Yours Truly on the News

Things have been really busy around here lately!!! And busy in the best way possible :)

I did an interview today with Jocelyn Maminta, a health reporter from WTNH 8, a local TV channel. I am so grateful that my neurologist, Dr. Daniel Dicapua, was also available to do this interview with us and lend his expertise. This has been an amazing opportunity to raise awareness about CMT and discuss our "Slice of Hope" fundraiser on a much bigger forum.

To view the interview, please click here:
http://www.wtnh.com/news/health/raising-money-to-research-rare-disease#.Ug7hD_oV9zA.email

To like our Facebook page, click here:
https://www.facebook.com/ASliceOfHopeForCmt

CMT Awareness Month is going to be BIGGER and BETTER this year!!!!

Friday, August 16, 2013

Charcot-Marie-Tooth Awareness Month

It's official, Gov. Dannel Malloy has signed an Official Statement proclaiming September 2013 as Charcot-Marie-Tooth Awareness Month in the State of Connecticut. Thank you Governor for supporting our cause and giving hope to the millions of people who suffer from CMT.

 And thank you also to Governor Christie for proclaiming CMT Awareness Month in the State of New Jersey! Very exciting times for all of us CMT'ers!!