Thanks to my physical and pool therapies, the right medication and lots of faith and praying, I have been feeling better the past couple of months. As CMT Awareness Month quickly approaches, I felt the desire to do more this year...to plan my first fundraiser and awareness event!!! It's definitely a bit daunting to take on the responsibility but the idea has been received really well by everyone, especially the wonderful support group I'm a part of.
My husband was born and raised in the town where we live and he works. Needless to say, he knows everyone. So I thought I could take advantage of that and plan an event at our local firehouse where he's a member and ask local business to participate by donating the food and sponsoring our event. All money raised will benefit the CMTA STAR Research Program.
We have lots of ideas in the works but I wanted to share our flyer and sponsor form here...in case anyone would like to contribute. Very excited for this to be a very successful event!
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My life with CMT and trying to deal with constant chronic pain with a positive attitude...
Monday, July 22, 2013
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About Me
- Michele
- CT, United States
- I'm a girl with hopes and dreams who has Charcot-Marie-Tooth (I know! You've never heard of it!). In this blog, I talk about my journey with this invisible disease and 2 reconstructive foot surgeries (and a 3rd minor surgery) I've gone through in the last 18 months. And I try to do it all with a positive attitude and a smile on my face :)
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