Tuesday, September 17, 2013

Reach for the Stars!!!

It's been four days since our "Slice of Hope for CMT" fundraising event and I still can't believe how much we accomplished. Our event was a complete success with a full house, delicious pizzas and dessert pies, over 50 items being raffled off and over $13,000 raised!!!! Yup! Almost three times our original goal of $5,000.

The Chief of Police, aka John's boss, also made an appearance to represent the mayor and read the proclamation declaring September 13 as Charcot-Marie-Tooth Awareness Day in Shelton!!

When I first thought of doing the event, I thought we had a lot of potential since my husband was born and raised in Shelton and we would probably get a lot of support. The final results were beyond my wildest dreams. I originally wanted to set our goal around $3,000 because I thought $5,000 might be too much. HA!!

I have a background in marketing and event planning and expected this to be a lot of work. Well, it turned out to be even more work than I thought, but the rewards were also so much sweeter. It's amazing what you can accomplish when you plan to do something like this...something for a CAUSE...something that will help others and yourself.

I have been overwhelmed by the outpouring of support, financial donations, and words of encouragement. So many people have approached us and mentioned how they never heard of CMT and how they would have never guessed I had any health issues. So many people have offered help and prayers. And so many others have simply just said what a great job we are doing at spreading the word.


As the event organizer, I knew everything that was going to happen that night, yet, I got the biggest surprise. Jeana Sweeney from the CMTA, drove up from Pennsylvania to support our event. This is the second time she drives up for a fundraiser that we're involved in and I was so grateful that she could be there to help us. To my complete shock, during our thanks and what I thought was going to be a short presentation by Jeana about CMT, she presented me with the CMTA I Am A Star Award!!! I was completely speechless. Lynne Krupa, our Support Group Facilitator, went on to read the emotional letter my sister submitted, which you can read here.


I am so thankful and honored that the CMTA chose me as their recipient. I see so many posts on Facebook and online about active CMT'ers and I can't believe they chose lil' ol' me.


I've been in "hibernation" since Saturday, pretty much just sleeping and relaxing...the event definitely took a physical toll, as much as I tried to sit whenever possible that night. I feel like we accomplished so much here in Connecticut this Awareness Month and I'm so proud of all the work we did to get there. I would encourage anyone who is interested in taking a more active role to do so. It may be taxing on our bodies but it's very fulfilling for our souls.

3 comments:

Cameron Von St James said...

Hi Michele! I have a quick question about your blog could you email me when you have a chance? Thanks! -Cam

Michele said...

Hi Cameron, please send me your email address. Thanks :)

husohorario said...

Thank you for the inspiration. I read your post and seems like if I were in front of a mirror. Cheers from Spain. www.husohorario.wordpress.com

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