The anti-inflammatory my surgeon prescribed really didn't help at all...I didn't feel any change the two weeks I was on it. When I saw my pain management doc he wanted me to give him a call in two weeks to follow up and see how/if the medicine was helping. We spoke on Tuesday and I asked him if we could switch from that one to the pain meds I had heard about. He gave me a new prescription which I started taking that night (more on that later).
I also told him how I don't feel that the 30+ pills I'm taking every day are helping me at all. I'm just as tired, exhausted, fatigued, and have no energy. It's been more than 2 months since I started taking them and if they're not helping me out, I'd rather get off them because 1. It's not fun taking so many pills and 2. They cost an arm and a leg! So we agreed that I'll call him in another 2 weeks to let him know how the new pain med is working out for me and at that time, he'll ask for all that blood work again. He wants to compare my first results with the new ones to see if there's any difference.
I started taking the new pain med on Tuesday night in conjunction with the anti-inflammatory. He wants me to take them together at first to try to get the best result possible and then if it works we can scale it back. Well, I have woken up all this week so rested and refreshed, like I'm not waking up with a huge weight over me, and the pain level has been significantly lower. It's actually been SOOOO amazing to wake up like how I would assume most human beings do.
The only downside has been the side effects, which has me really dizzy and groggy! It's been hard to be in meetings at work - falling asleep in front of your boss - NOT COOL! Oh and they also had a belated surprise birthday party planned for me on Wednesday and I felt so dizzy John picked me up so I spoiled the whole surprise...oops! I'm just hoping my body gets used to the meds so I don't have to stop taking them because I'm enjoying feeling lighter :)
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My life with CMT and trying to deal with constant chronic pain with a positive attitude...
Saturday, April 2, 2011
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About Me
- Michele
- CT, United States
- I'm a girl with hopes and dreams who has Charcot-Marie-Tooth (I know! You've never heard of it!). In this blog, I talk about my journey with this invisible disease and 2 reconstructive foot surgeries (and a 3rd minor surgery) I've gone through in the last 18 months. And I try to do it all with a positive attitude and a smile on my face :)
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2 comments:
Hi I also have cmt, i am from scotland woo, what meds do you take because I can't find any good ones anywhere, they all do nothing for me !
What happened to clicks for cmt and was wondering what meds you have found to help?
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