Time flies...I can't believe it has already been 2 weeks since my surgery. Since I've been home, I've only been outside once, last Saturday when it was nice and sunny out. But it was such a hassle to get me and the wheelchair outside that I haven't really bothered to go back. I guess the fact that I am a homebody comes in really handy right now...I definitely don't have cabin fever yet, I'm actually still enjoying myself (knock on wood this lasts). I'm staying in my parents' room where I get to see the backyard, an apple tree (and the blue bird that visits it everyday), and most importantly, sunlight. This may be a huge reason as to why I don't feel so caged in.
It's also been pretty busy for me that I haven't really looked at the pile of gossip magazines in the corner, or read my books, or watched the DVD's I made sure to have, or listen to the CD's many friends have given me. Most of my time consists of emailing or talking on the phone with my sisters in Brazil (which happens to be very entertaining) or hanging out, emailing and talking to friends and family who come to visit me. The house is constantly decorated with beautiful flowers I've received, which I am so grateful for.
There are definitely a few things that I have had to get used to, like sleeping on my back, which I have never been able to do until now, or what a process showering has become (I can't just walk in and do it on my own). I also need to get used to keeping my foot up at all times...before the surgery, I would never do that because I would always feel numbness on my left foot and that is something that is still bothering me a lot now. At least before I could try stretching my foot or my toes, now I can only adjust the pillows I rest my foot on or let my foot drop for a couple of minutes.
The itching all over my body that I started to feel in the hospital is still bothering me. So much so that my mom started to give me water with vinegar and sugar (an old recipe from when she was a kid) to help and I've started to feel better. Right now, the thing that is definitely the most uncomfortable (TMI ALERT) is just how hard it is to regulate my stomach. The medication I am on is so strong that it "blocks" me so I have to take Milk of Magnesia and eat lots of fiber to "release" me...anyway, making a long story short, it's just hard to find a balance.
The nurse and physical therapist were back this week and I was assigned my first set of homework that I need to do twice a day. While the therapy seems pretty simple, it's crazy how tired I can get from so little exercise.Thankfully, the pain is still under control with taking the meds every 6 hours. I have felt some annoying tingling sensation on the back of my foot, the part that rests on the pillow.
I am truly fortunate to have my parents who help me so much and are doing everything for me. I don't even know how I would be able to go through with this process without their help. As thankful as I am, I also miss my home and most importantly, I miss being with John. We dated long distance for 4 years before we moved in and now we're kind of back to that again. I know it's only temporary but I just wish CT and NJ were closer.
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My life with CMT and trying to deal with constant chronic pain with a positive attitude...
Friday, April 30, 2010
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About Me
- Michele
- CT, United States
- I'm a girl with hopes and dreams who has Charcot-Marie-Tooth (I know! You've never heard of it!). In this blog, I talk about my journey with this invisible disease and 2 reconstructive foot surgeries (and a 3rd minor surgery) I've gone through in the last 18 months. And I try to do it all with a positive attitude and a smile on my face :)
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1 comments:
Funny enough, I was going to ask you how your bowels were functioning these days! Yep, everything you're experiencing is a total memory for me! May I suggest cherries, V8 Vfusion juice, and Miralax sprinkled in your OJ with breakfast every morning?
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