It's time to go back to work and it feels as if I've been off for months...I went for my follow up on Thursday and thankfully things are looking good. My surgeon is really pleased with the surgery and the recovery has gone really well. Besides some swelling, my foot's doing great - I don't even need physical therapy. As you can see in the pic, the cut is a lot smaller than the others and thankfully it's off to the side of my foot so it doesn't hurt when I walk. Now we just have to wait for the swelling to go down and hope to see the results in about 4 to 6 weeks.
My biggest problem throughout recovery is the same as always, my leg pain. Unfortunately, the medicine that I was so excited about hasn't been working as well as it was before everything got messed up...I am hoping that going back to my routine, things will fall into place...what a sweet life it was when it worked!
On a completely unrelated note, my mom sent me this amazing video .... we should all strive to be a little more like this, help our brother/sister in need when they are down...click HERE to see.
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My life with CMT and trying to deal with constant chronic pain with a positive attitude...
Monday, July 25, 2011
Sunday, July 10, 2011
Up and About....
Thankfully everything went really well with my surgery on Friday...the hardest thing about the procedure was waking up when it was time to go home. I was just so comfortable and warm that the nurse that kept trying to wake me up really annoyed me. My Dr. was really pleased with the surgery and said everything went great. I guess compared to the two uber-complicated procedures last year, you could tell this was a piece of cake when we were in the car and driving home at 11:30am of the same day!!!!
I slept on and off all day Friday, which really messed up my body clock; I could barely sleep that night. And since my first day/nights have always been the hardest, this also couldn't be any different, even if on a smaller scale. Part of the reason I couldn't sleep is that the nerve on my right callus kept "zinging" me all night long, it was like aftershocks over and over that couldn't allow me to fall asleep.
Day 2 went much better and I fought to stay awake all day. As per doctor's orders, I put on shoes and moved around the house a little bit. He said I could use crutches, but since I have no balance I chose to go with my good friend "The Walker." It was a little strange to walk so quickly post-op but at the same time I'm so relieved things are so much easier this time around. I definitely couldn't deal with 6 weeks in a cast right now. Night 2 went much better than the first and was very restful and today I'm catching up on my emails and all my reading...
I want to share something I just found out about through a great CMT group on Facebook. It was my first time reading The Spoon Theory but it definitely won't be the last. Christine Miserandino describes her "invisible disease" in a way that really connected with me and maybe in a way that I haven't been able to express to others before. So please take a few minutes and read The Spoon Theory HERE.
What do you think?
I slept on and off all day Friday, which really messed up my body clock; I could barely sleep that night. And since my first day/nights have always been the hardest, this also couldn't be any different, even if on a smaller scale. Part of the reason I couldn't sleep is that the nerve on my right callus kept "zinging" me all night long, it was like aftershocks over and over that couldn't allow me to fall asleep.
Slowly but surely! |
I want to share something I just found out about through a great CMT group on Facebook. It was my first time reading The Spoon Theory but it definitely won't be the last. Christine Miserandino describes her "invisible disease" in a way that really connected with me and maybe in a way that I haven't been able to express to others before. So please take a few minutes and read The Spoon Theory HERE.
What do you think?
Thursday, July 7, 2011
Time for Surgery #3!!
As ready as I am for my surgery tomorrow, I sure was NOT ready for the little surprise I got this morning. As I was showering to get ready for work, I leaned in to put the conditioner down and slipped on something....just then, I saw my life flash before my eyes and everything went in slow motion. LOL. Ok it wasn't really this dramatic but it WAS very scary. Since I don't have any balance, I completely fell out of my tub and since there was NOTHING to hold on to, I brought down the curtain and the conditioner that was in my hand flew everywhere.
I have to be thankful that John was home and rushed to help me right away and also besides a small cut on my left foot and a lot of soreness, I'm ok. This never happened to me before and now it's a must to install those "old people" bars in my shower and maybe have a shower door instead of curtains. At least I would fall inside of the shower instead of out. I called my new surgeon just to give him a heads up but it's not enough damage to stop the surgery...thank goodness! I'm ready to get this show on the road.
I spoke to the hospital a little while ago and I'm the first appointment in the am so we have to be there at 6am and the surgery will be at 7:30am.
Thanks for all the well wishes and I'll see you on the other side :)
I have to be thankful that John was home and rushed to help me right away and also besides a small cut on my left foot and a lot of soreness, I'm ok. This never happened to me before and now it's a must to install those "old people" bars in my shower and maybe have a shower door instead of curtains. At least I would fall inside of the shower instead of out. I called my new surgeon just to give him a heads up but it's not enough damage to stop the surgery...thank goodness! I'm ready to get this show on the road.
I spoke to the hospital a little while ago and I'm the first appointment in the am so we have to be there at 6am and the surgery will be at 7:30am.
Thanks for all the well wishes and I'll see you on the other side :)
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About Me
- Michele
- CT, United States
- I'm a girl with hopes and dreams who has Charcot-Marie-Tooth (I know! You've never heard of it!). In this blog, I talk about my journey with this invisible disease and 2 reconstructive foot surgeries (and a 3rd minor surgery) I've gone through in the last 18 months. And I try to do it all with a positive attitude and a smile on my face :)
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